Developing a set of patient‐centered outcomes for routine use in endometriosis: An international Delphi study

Alba Nicolás‐Boluda, Énora Le Roux, Arounie Tavenet, Jérôme Bouaziz, Paolo Vercellini, Pamela Stratton, Arnaud Fauconnier
Acta obstetricia et gynecologica Scandinavica · 2023 · vol. 103(1) , pp. 138–152 · doi:10.1111/aogs.14694 · PMID:37905359 · W4388034063
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⚙ AI-generated summary by claude@2026-06, 2026-06-08 ⓘ

This international Delphi study identified six patient-reported and ten clinician-reported outcomes for routine endometriosis care, along with a supplementary list and recommendations for new tools.

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Abstract

INTRODUCTION: There is large variation in individual patient care for endometriosis. A uniform approach to measure outcomes could be incorporated into routine clinical practice to personalize and monitor treatments and potentially improve the quality of care. The aim of this study is to identify a group of patient-centered outcomes for use in routine endometriosis care which are relevant to all patient profiles. MATERIAL AND METHODS: By means of a modified two-round Delphi study with international representation including healthcare professionals, researchers and patient representatives (51 participants, 16 countries) we developed a set of patient-centered measurements. The participants evaluated 47 Patient Reported Outcome Measures (PROMs) and 30 Clinician Reported Outcome Measures (CROMs) regarding their feasibility and relevance for their use in routine endometriosis care. After the two rounds of quotation, meetings of the experts were convened to participate in a final discussion to finalize the consensus of the final set of included measures. RESULTS: The final set of patient-centered outcomes includes six PROMs (measuring symptomatic impact, pain, work productivity and quality of life) and 10 CROMs (measuring clinical, imaging and surgical indicators). A supplementary list of outcomes was added to include important dimensions that were considered essential by the expert panel but are not relevant to all patients. In addition the need for development of specific tools (PROMs) measuring the psychological impact and the impact in sexual activity of endometriosis was highlighted. CONCLUSIONS: We have developed a set of patient-centered outcomes measures in endometriosis care. The selected outcomes comprise the common features for all patients suffering from endometriosis. adapted for use in routine practice. The list of outcomes has been adapted for use in routine practice from which clinicians can chose, depending on their needs.

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Condition tags

mesh:D004715endometriosis

MeSH descriptors

Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Delphi Technique Delphi Technique Delphi Technique Delphi Technique Female Female Female Female Humans Humans Humans Humans Outcome Assessment, Health Care Outcome Assessment, Health Care Outcome Assessment, Health Care

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

References (45)

Cited by (2)

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License: CC0 · commercial use OK