Measuring what matters: A systematic review of patient-reported outcome measures in endometriosis

Importance: Endometriosis affects approximately 10% of women of reproductive age, causing chronic pain, dysmenorrhea, dyspareunia, and fatigue. Patient-reported outcome instruments for endometriosis, including the Endometriosis Health Profile-30, Endometriosis Health Profile-5, Biberoglu and Behrman Scale, Patient-Reported Outcomes Measurement Information System, and Visual Analogue Scale, may not capture all patient-identified concepts.