Endometriosis and expressions of self-management and resilience among Asian women living in Canada during the COVID-19 pandemic: A photovoice study

Nisha Marshall, A. Fuchsia Howard, Kerry Marshall, Hannah Rojas, Hannah E Rojas, Natasha L. Orr, Heather Noga, Jessica Sutherland, Roop Bassra, А.Б. Леонова, Anna Leonova, Erin Fernie, Vinita Puri, Paul J. Yong, Paul John Yong
Journal of public health research · 2026 · vol. 15(1) , pp. 22799036251407192 · doi:10.1177/22799036251407192 · PMID:41602561 · W7125492106
article OA: gold CC0
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⚙ AI-generated summary by claude@2026-06, 2026-06-07 ⓘ

This photovoice study explored how Asian women in Canada used social support, daily actions, healthcare access, and knowledge acquisition to self-manage endometriosis and build resilience during the COVID-19 pandemic.

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Abstract

Background: The COVID-19 pandemic posed unique challenges for Asian people living with endometriosis. The purpose of this study was to describe the endometriosis-related coping and self-management strategies used by South, East, and Southeast Asian women living in British Columbia, Canada, during the COVID-19 pandemic and how these contributed to their strength and resilience. Design and methods: Using photovoice methodology, South, East, and Southeast Asian women residing in a Western Canadian province were invited to generate photographs representing their experiences of living with endometriosis during the COVID-19 pandemic. Photographs were discussed during semi-structured interviews, and data were thematically analyzed. Results: = 22) conveyed that during the COVID-19 pandemic: (1) their social support context played a pivotal role in shaping their experiences and ability to cope with and self-manage their endometriosis, which involved (2) taking empowering actions in daily living, accessing healthcare, and acquiring knowledge. (3) Taking empowering actions fostered a sense of inner strength and resilience characterized by advocating for self and others, carrying forward empowering actions to other life domains, and cultivating gratitude and hope for their future. Conclusions: East, South, and Southeast Asian women demonstrated a resilience approach to living with endometriosis during the COVID-19 pandemic. By drawing on support systems and coping and management strategies, they built resilience mechanisms that promoted well-being and sustainability.

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Condition tags

endometriosis

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

References (40)

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