Perspectives and Priorities for Endometriosis Multidisciplinary Team Care in Australia: A Qualitative Mixed-Methods Study Involving Patients, Caregivers and Health Professionals

BACKGROUND: Endometriosis is a chronic condition affecting 1 in 7 women, girls, and gender-diverse individuals in Australia. It significantly impacts daily life, causing pain, psychological distress and productivity loss. Multidisciplinary team (MDT) care is fundamental for managing chronic pain in endometriosis. Nevertheless, limited studies have explored perspectives on MDT care in the Australian context, and there remains a lack of consensus on what a MDT care model should include and how improved continuity of care can be achieved. OBJECTIVE: This study aims to evaluate patient and health professional perspectives on MDT care models for endometriosis and pelvic pain, and to inform decisions about establishing future MDT clinics in Australia. METHODS: A mixed-methods study was co-designed involving an advisory group of 14 members. Surveys capturing quantitative and qualitative data were disseminated to patients/carers and healthcare professionals. Thematic analysis was performed on qualitative data, and consensus statements were developed and refined through focus groups. RESULTS: Participants included 29 healthcare professionals and 24 patients/carers. Recommendations were voiced under six key themes: preferences for clinic environments, staff interactions, holistic support, financial accessibility and resource needs. Patients valued empathetic, experienced clinicians and preferred both options for face-to-face and telehealth interactions. Financial strain was a significant concern, highlighting the need for affordable care. Both groups stressed the importance of up-to-date, evidence-based information and personalised care plans. CONCLUSION: This study underscores the need for person-centred, holistic and accessible MDT clinics for endometriosis in Australia. The consensus statements provide a blueprint for developing such clinics. Implementing these recommendations can enhance endometriosis care quality, improving patient experiences and outcomes. This provides the first steps to better understanding the wants and needs of both patients, carers and HCP in setting up future services as well as modifying existing services.