Journal of community genetics

· 1 paper in corpus

qualitative 2020

"It's being part of the big picture, even though you're a tiny jigsaw piece"-motivations and expectations of individuals participating in the Enroll-HD observational study

doi:10.1007/s12687-020-00459-3 ·PMID:32157658

Predictive test guidelines for Huntington's disease (HD) recommend individuals are offered opportunities to participate in research regardless of test outcome. Consistent with most HD centres of excellence, the Manchester Centre for Genomic…