OBJECTIVE: Patient-reported outcome measures (PROMs) capture patients' experiences and perspectives of symptoms. One approach involves measuring the "most bothersome symptom," an outcome recommended in some regulatory guidance and core outc…
OBJECTIVE: Endometriosis is a condition with symptoms that vary widely, often affecting daily activities and quality of life. A patient-centered approach to identifying and measuring the most important symptoms has been recommended in the c…
INTRODUCTION: This study identified and synthesized the current qualitative literature on women's causal beliefs about their chronic pelvic pain. METHODS: Academic databases and relevant gray literature sources were searched from their inc…
INTRODUCTION: "Improvement in the most bothersome symptom" was recently selected as a core outcome for endometriosis intervention trials. This study aimed to explore the applicability of the construct of "symptom bother" in representing the…
INTRODUCTION: There is considerable variation in the types of symptoms experienced by people living with endometriosis, and it is unclear which symptoms impact people the most. This study aimed to identify the specific symptoms that are "mo…
Painful sex (dyspareunia) is a highly prevalent condition with considerable burden on individuals and their relationships. Social media is a digital technology that allows the sharing of ideas, information, and experiences through virtual n…